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Joined 7 months ago
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Cake day: March 4th, 2024

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  • Dude, I 100% get what your saying.

    Unfortunately what your asking of people requires personal sacrifice, and people will mentally go all over the place to resist that.

    A personal anecdotes is that I’m no longer in contact with my family because I refused to see my racist grandfather on his deathbed and didn’t attend his funeral.

    My grandfather was an abusive, literal stereotype of a racist(would say things like “them n-words down the road are fucking up this town”) and a raging alcoholic. The world is better because he’s fucking dead. Now I don’t have a family of origin because I wouldn’t pretend he was a good person.

    Men will lose friends and family if they start calling this shit out. It’s hard. You get told to “mind your business” or "it’s just a joke " or get your masculinity questioned. Or the whole “but they’re family” thing. I get why people resist it. No one wants to lose their social support, but often that’s what it comes down to, and they’ll make it feel like you’re the one who’s in the wrong the whole time.

    Social pressure is a hell of a thing. I think framing the context around why men don’t call this stuff out will help them recognize why they should.





  • It would if there’s already a therapeutic medication available(but more research could create a cure, or better therapies).

    Usually insurance will deny a medication for these diseases either because the medication currently available is older(no one prescribes that anymore!), or it’s too expensive, or it’s too new/was developed in another country. For example ireland developed a new medication for narcolepsy, but it’s impossible to get in the US, nevermind getting insurance coverage.

    I’m on one med that was developed in the 60’s and it’s the only one that actually works. It’s over $300 a month. The other newer one I tried made in the 90’s is over $1000 a month and doesn’t work as well. Insurance tried to deny coverage for both.

    The problem with older meds is there’s fewer manufacturers so they can charge whatever they want due to lack of competition. There’s little demand, so the few people who need it are charged out the ass for them since insurance will deny deny deny.





  • This could be very good for people with orphan diseases(diseases that are rare enough that they aren’t profitable for private companies to research)

    Also, having an orphan disease often results in insurance companies denying coverage for everything because they don’t have a policy written up for that specific disease… so there’s no script for the workers to follow. Then your doctor has to argue with them, which can take weeks, in the meantime you have no medication.

    Yeah, I’m not mad or anything. I wish I could’ve cooked up my own meds when insurance denied me life giving meds because they’d never heard of my disorder.